Self Help Clearinghouse
The Myositis Association
International network. 65 groups. Founded 1993. Dedicated to serving those with polymyositis, dermatomyositis, juvenile myositis and inclusion body myositis. Provides education and support. Also serves as a clearinghouse between patients and scientists. Newsletter, research reviews, literature and phone support. Area meetings available in limited areas, as well as annual conference. Guidelines available for starting similar groups. Fundraising for research. Dues $35/yr.
Myosistis Association of America
1737 King St. Suite 600
Alexandria, VA 22314
Myositis Online Support Group
Online. Provides a community of support for patients affected my myositis. Site includes groups, blogs, forums and more.