Self Help Clearinghouse
Foundation for Nager and Miller Syndromes
International. Founded 1989. Networking for families that are affected by Nager or Miller syndromes. Provides referrals, library of information, phone support, newsletter, brochures and scholarships for Camp About Face.
c/o DeDe Van Quill
13210 So. East 342nd Street
Auburn, WA 98092
Voice: 1-800-507-3667 or 253-333-1483