Niemann Pick Type C
Self Help Clearinghouse
National Niemann-Pick Disease Foundation, Inc.
International network. Founded 1992. Provides support for families affected by Niemann-Pick disease type A, B and C. Promotes and supports research. Provides newsletter, family directory, networking, family conference, phone support, information and referrals. Guidelines available to help start similar groups.
National Niemann-Pick Disease Foundation
PO Box 49
415 Madison Avenue
Ft. Atkinson, WI 53538