Respiratory Disease / Emphysema

Respiratory Disease / Emphysema

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Alpha-1 Association

International. 54 affiliated groups. Founded 1988. Support, advocacy and information for persons with alpha-1 antitrypsin deficiency and their families. Networking of members through newsletter and support groups across the country. Sharing of current information on treatments and research. Newsletter, group development guidelines, educational materials and advocacy information.

Write:

Alpha 1 Association

2937 SW 27th Ave., Suite 106

Miami, FL 33133

Voice: 1-800-521-3025

Fax: 305-648-0089

Website: http://www.alpha1.org

E-mail: info@alpha1.org

Verified: 2/12/2013

Coalition for Pulmonary Fibrosis

National. 55 affiliated groups. 25,000 members. Founded 2001. Information, resources, educational materials and support for patients with pulmonary fibrosis.

Write:

Coalition for Pulmonary Fibrosis

10866 W. Washington Blvd, Ste 343

Culver City, CA 902329-5118

Voice: 1-888-222-8541

Website: http://www.coalitionforpf.org

E-mail: info@coalitionforpf.org

Verified: 1/29/2013

COPD Survivors

Provides support for patients diagnosed with COPD which includes emphysema and/or chronic bronchitis also with an asthma component.

Website: http://health.groups.yahoo.com/group/copdsurvivors

E-mail: copdsurvivors-owner@yahoogroups.com

Verified: 2/13/2013

EFFORTS

Online. Support for persons afflicted with emphysema. Offers information on local support groups. Forum for sharing ideas and help in dealing with emphysema. Listserv. Advocacy for research.

Write:

EFFORTS

PO Box 20241

Kansas City, MO 64195-0241

Website: http://www.emphysema.net/bindex.html

Verified: 2/14/2013

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