Self Help Clearinghouse
National. 23 chapters, 170 affiliated groups. Founded 1998. Dedicated to providing emotional support to people with scleroderma, their families and caregivers. Sponsors scleroderma education and public awareness events and funds research. Referrals to local support groups and physicians. Advocacy program and annual conference. Online message board. Dues $25/yr.
300 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673 or 978-463-5843 (Mon.-Fri., 8:30am-5pm EST)