Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Smith-Lemli-Opitz/RSH Foundation

International network. Founded 1988. Support for families, medical professionals and others dealing with individuals that have Smith-Lemli-Opitz (RSH) syndrome. Research funding also available via a grant process. Phone, social media (Facebook/Twitter/Yahoo chat group) and e-mail support available. Bi-annual conferences and newsletter.


Smith-Lemli-Opitz / RSH Foundation

c/o Gretchen Noah

P.O. Box 10598

Fargo, ND 58106-0598

Voice: 701-367-1976



Verified: 1/24/2013

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