Self Help Clearinghouse
International network. Founded 1988. Support for families, medical professionals and others dealing with individuals that have Smith-Lemli-Opitz (RSH) syndrome. Research funding also available via a grant process. Phone, social media (Facebook/Twitter/Yahoo chat group) and e-mail support available. Bi-annual conferences and newsletter.
Smith-Lemli-Opitz / RSH Foundation
c/o Gretchen Noah
P.O. Box 10598
Fargo, ND 58106-0598