Self Help Clearinghouse
(Parents and Researchers Interested in Smith-Magenis Syndrome) International network. Founded 1993. Parent-to-parent program offering support, advocacy and education for families affected by Smith-Magenis syndrome. Information, referrals, online discussion group, literature, phone support and newsletter. Dues $30.
21800 Town Ctr. Plaza Ste.226A-633
Sterling, VA 20164