Self Help Clearinghouse
Spina Bifida Association of America
(BILINGUAL) National. 62 chapters. Founded 1972. Encourages educational and vocational development of patients. Promotes public awareness, advocacy and research. Newsletter, chapter development guidelines, national resource center, scholarships and film/videotapes.
Spina Bifida Assoc. of America
4590 MacArthur Blvd. NW, Suite 250
Washington, DC 20007-4226
Voice: 1-800-621-3141 or 202-944-3285