Self Help Clearinghouse
National Tay-Sachs and Allied Diseases Association
(MULTILINGUAL) International. 2 chapters. Founded 1957. Dedicated to the treatment and prevention of Tay-Sachs, Canavan and related genetic diseases. Provides information and support services to individuals of all ages and families affected by these disorders as well as caregivers and the public at large. The strategies for achieving these goals include public and professional education, research, genetic screening, support services, peer support group for parents, grandparents, extended family members and advocacy. Translations available in Spanish, Russian, Hebrew and French.
National Tay-Sachs and Allied Diseases
2001 Beacon St., Suite 204
Boston, MA 02135
Voice: 1-800-906-8723 or 617-277-4463