Twin to Twin Transfusion Syndrome
Self Help Clearinghouse
Twin to Twin Transfusion Syndrome Foundation
(MULTILINGUAL) International. 12 national coordinators. Founded 1989. Dedicated to providing immediate and lifesaving educational, emotional and financial support for families, medical professionals and caregivers before, during and after pregnancy with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, furthering medical research, providing neonatal intensive care, special needs and bereavement support. Newsletter, literature, phone support, visitation and conferences. Message boards and private group on Facebook for diagnosed, loss of one, loss of both, special needs and NICU support. Guidelines for professionals on multiple birth loss during pregnancy. International registry. Website in many languages.
Twin to Twin Transfusion Syn Assoc
411 Longbeach Parkway
Bay Village, OH 44140
Website: http://www.tttsfoundation.org and http://www.facebook.com/groups/tttsfoundation