Self Help Clearinghouse
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
National network. Founded 1996. Support and resource network for families coping with velo-cardio-facial syndrome (aka Shprintzen syndrome, 22q11 deletion syndrome, 22q11.2 deletion syndrome and DiGeorge syndrome). Provides family programs, parent-to-parent networking, educational materials, newsletter and annual conference.
Velo-Cardio-Facial Sydrome Ed. Fdn
P.O. Box 12591
Dallas, TX 75225