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National Organization for Rare Disorders, Inc.
- arteriovenous malformation of the brain
- arteriovenous malformation of the spine
Arteriovenous malformation (AVM) is a vascular lesion in which arteries and veins are tangled and not connected by capillaries. They are often presumed to be congenital, and they are rarely detected in the perinatal period, and otherwise there is no direct evidence that they form in utero. The lack of capillaries allows blood traveling through the abnormal fistulous connections to flow rapidly. High flow in the fistulas can lower proximal arterial pressure and increase the pressure in the veins draining the AVM. AVM can occur in many different parts of the body, but those located in the brain, brainstem and spinal cord (neurological AVM) can affect the entire body.
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Vascular Disease Foundation
1075 S. Yukon Street
Lakewood, CO 80226
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
National Organization of Vascular Anomalies
PO Box 38216
Greensboro, NC 27438-8216
Venous Disease Coalition
1075 S. Yukon Street, Suite 320
Lakewood, CO 80226
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc.® (NORD). Cigna members can access the complete report by logging into myCigna.com. For non-Cigna members, a copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html.
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
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This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 8/24/2010
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