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Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
National Organization for Rare Disorders, Inc.
- Akureyri Disease
- Benign Myalgic Encephalomyelitis
- Epidemic Myalgic Encephalomyelitis
- Epidemic Neuromyasthenia
- Iceland Disease
- Raphe Nucleus Encephalopathy
- Royal Free Disease
- Tapanui Flu
Until the late 1980s, myalgic encephalomyelitis was thought to be a distinct, infectious disorder affecting the central, peripheral and autonomic nervous systems and the muscles. Its major symptom was fatigue to the point of extended periods of exhaustion. A group of experts studying the Epstein-Barr virus first published strict criteria for the symptoms and physical signs of chronic fatigue syndrome in 1988. This case definition was further refined in 1994.
The Fact Sheet for CFS published by the National Institutes of Allergy and Infectious Diseases of the National Institutes of Health states that "[T]oday, CFS is also known as myalgic encephalomyelitis, postviral fatigue syndrome, and chronic fatigue and immune dysfunction syndrome." ME/CFS is now recognized as part of a range of illnesses that have fatigue as a major symptom.
ME/CFS is not rare. The CDC estimates that there are as many as 500,000 persons in the United States who have CFS-like symptoms. However, the disorder remains debilitating, complex and mysterious in origin, natural history, understanding and treatment.
National Chronic Fatigue Syndrome & Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
7 Apollo Office Court
Bucks, Intl MK18 4DF
Tel: 01280 827070
Center for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
NIH/National Institute of Allergy and Infectious Diseases
Office of Communications and Government Relations
6610 Rockledge Drive, MSC 6612
Bethesda, MD 20892-6612
CFIDS Association of America
PO Box 220398
Charlotte, NC 28222-0398
MAME, Inc. (Mothers Against Myalgic Encephalomyelitis)
1 Orne Square
Salem, MA 01970
National CFIDS Foundation, Inc.
103 Aletha Road
Needham, MA 02492-3931
P.O. Box 9204
Bardonia, NY 10954
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
ME Research UK
North Methven Street
Perth, PH1 5PP
Tel: 0044 01738 451234
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc.® (NORD). Cigna members can access the complete report by logging into myCigna.com. For non-Cigna members, a copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html.
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 4/8/2009
Copyright 1987, 1988, 1989, 2004, 2009 National Organization for Rare Disorders, Inc.