49XXXXY Syndrome

Self Help Clearinghouse

49 Variant

Online. 140 members. Founded 2002. Message board only for parents who have a son with the 49 variant. Provides support, education and information. Members must be approved by the moderator.
Website: http://health.groups.yahoo.com/group/49variant
Verified: 3/30/2011

49XXXXY

National network. Founded 1990. Mutual support and networking for families affected by 49XXXXY disorder. Information, pen pals, phone support and newsletter.
Write:
49XXXXY
c/o Elise Watzka
870 Miranda Green
Palo Alto, CA 94306
Voice: 650-941-2408
Website: http://klinefeltersyndrome.org/49er.htm
E-mail: epwatzka@gmail.com
Verified: 3/31/2011


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