Anemia

Self Help Clearinghouse

Myelodysplastic Syndromes Foundation

Online. Unmoderated forums for patients and professionals dealing with myelodysplastic syndromes, a group of bone marrow diseases. Also has referrals to treatment centers.
Write:
Myelodysplastic Syndromes Foundati
4573 S. Broad Street, Ste 150
Yardville, NJ 08620
Website: http://www.mds-foundation.org
Verified: 7/31/2012

Aplastic Anemia and MDS International Foundation, Inc.

International. Founded 1983. Offers a support network where patients and families can connect with others. Provides free educational materials for those affected by aplastic anemia, MDS and PNH, advocacy, newsletters, webinars, interactive online learning center, and funds research.
Write:
Aplastic Anemia and MDS Int'l Fdn.
100 Park Ave., Suite 108
Rockville, MD 20850
Voice: 1-800-747-2820 or 301-279-7202
Fax: 301-279-7205
Website: http://www.aamds.org
E-mail: info@aamds.org
Verified: 7/11/2012

Cooley's Anemia Foundation

National. 10 chapters. Founded 1954. Offers education and networking for families affected by Cooley's anemia (thalassemia). Fund-raising for research. Newsletter, annual seminars, research grants, patient support group, patient services and chapter development guidelines.
Write:
Cooley's Anemia Foundation
330 Seventh Ave., Suite 200
New York, NY 10001
Voice: 1-800-522-7222 or 212-279-8090
Fax: 212-279-5999
Website: http://www.cooleysanemia.org
E-mail: info@cooleysanemia.org
Verified: 7/11/2012