Barth Syndrome

Self Help Clearinghouse

The Barth Syndrome Foundation

International. Founded 2000. (MULTILINGUAL) Offers support to affected individuals and their families. Provides information, support awareness, medical database, diagnostic and clinical descriptions, and fact sheets. Moderated listserv information available on website, Offers research, outreach, newsletter, referrals, pen pals and biennial conference. Peer-to-peer mentoring program.
Write:
Barth Syndrome Foundation
675 VFW Parkway #372
Chestnut Hill, MA 02467
Voice: 617-469-6769
Website: http://www.barthsyndrome.org
Verified: 11/16/2009


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