Caregivers / Families of Nursing Home Residents

Self Help Clearinghouse

CAPS (Children of Aging Parents)

National. 65 groups. Founded 1977. Membership organization dedicated to the needs of caregivers of the elderly. National network of support and offers information, referrals and counseling.
Write:
Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
Voice: 1-800-227-7294 or 215-355-6611
Website: http://www.caps4caregivers.org
Verified: 1/26/2011

Well Spouse Association

International. Founded 1988. Provides emotional support to spousal caregivers of the chronically ill and/or disabled through support groups, round robins, mentor programs, online chat forum, respite weekends, national conference and a quarterly newsletter. $30/yr. but minimum $5 for financial hardship cases. Guidelines and assistance available for starting new groups.
Write:
Well Spouse Association
63 W. Main Street, Suite H
Freehold, NJ 07728
Voice: 1-800-838-0879 or 732-577-8899 (Mon.-Fri., 10am-3pm EST)
Fax: 732-577-8644
Website: http://www.wellspouse.org
E-mail: info@wellspouse.org
Verified: 1/14/2011

ElderCare Rights Alliance

Statewide model. Founded 1972. Promotes the principles of justice and dignity in the long-term care system through education, advocacy and action. Provides individual advocacy and advocacy training, crime victim support, community education, family caregiver training, training for nursing home resident and family councils.
Write:
ElderCare Rights Alliance
2626 E. 82nd St., Suite 220
Bloomington, MN 55425
Voice: 1-800-893-4055 or 952-854-7304
Fax: 952-854-8535
Website: http://www.eldercarerights.org
E-mail: jgolden@eldercarerights.org
Verified: 1/28/2011

National Family Caregivers Association

National. Founded 1992. Dedicated to improving the quality of life for family caregivers through support and validation, education, information, public awareness and advocacy. Information and referrals, quarterly newsletter, resources and literature.
Write:
Nat'l Family Caregivers Assn.
10400 Connecticut Ave., Suite 500
Kensington, MD 20895-3944
Voice: 1-800-896-3650 or 301-942-6430
Fax: 301-942-2302
Website: http://www.thefamilycaregiver.org
E-mail: info@thefamilycaregiver.org
Verified: 1/28/2011

ElderCare Online

Online. Founded 1997. Provides daily support for caregivers. Biweekly e-mail newsletter includes articles, news releases, self-care tips, etc. Online chats and message boards covering a broad range of topics. Some chatrooms are run by authors and professionals. Free caregivers book. Offers software for medical planners, taxes, etc.
Website: http://www.ec-online.net
Verified: 3/28/2011

Family Caregiver Alliance

Online. Unmoderated listservs for caregivers to share strategies, information, education, support and ideas with each other. Includes forums for caregivers, Huntington's Disease and movement disorders, and groups for gay, lesbian, bisexual and transgendered caregivers. Provides free fact sheets and newsletter.
Website: http://www.caregiver.org
Verified: 3/28/2011

Today's Caregiver

National Resource. Provides support and information to enable caregivers to cope and make the best healthcare decisions for their clients, family and friends. Offers newsletter, online forum, conferences, information and referrals. For support group listings by state, go to the website and click on the 'Local Resources' tab (Note: be sure to confirm meeting information by phone or e-mail before attending).
Write:
Today's Caregiver
3350 Griffin Rd.
Ft. Lauderdale, FL 33312
Voice: 1-800-829-2734
Website: http://www.caregiver.com
E-mail: info@caregiver.com
Verified: 1/28/2011

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