Coffin-Lowry Syndrome

Self Help Clearinghouse

The Coffin-Lowry Syndrome Foundation

International network. Founded 1991. Serves as a clearinghouse for information on Coffin-Lowry syndrome. Forum for exchanging experiences, advice and information with other CLS families. Seeks to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research. Maintains mailing list of families and professionals. Provides newsletter, family support and informational packet.
Write:
Coffin-Lowry Syndrome, c/o Mary Hoffman
675 Kalmia PIace NW
Issaquah, WA 98027
Voice: 425-427-0939 (after 5:30pm PST)
Website: http://clsf.info
E-mail: coffinlowry@gmail.com
Verified: 8/2/2012


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