Disabilities (General) / Spinal Cord Injury

Self Help Clearinghouse

National Spinal Cord Injury Association

National. 35 chapters and support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, monthly newsletter, support groups and peer counseling. Online listing of local chapters.
Write:
National Spinal Cord Injury Association
1 Church Street, Suite 600
Rockville, MD 20850
Voice: 1-800-962-9629 (Mon.-Fri., 8:30am-5pm EST)
Fax: 301-990-0445
Website: http://www.spinalcord.org
E-mail: info@spinalcord.org
Verified: 01/14/2011

Barn Builders Peer Support Network

National network. Founded 1979. Provides peer support through networking for farmers and ranchers with disabilities. Connects recently injured individuals with persons with similar disability. Support through talking, correspondence and visitation.
Write:
Barn Builders Peer Support Network
Breaking New Ground
225 S. University St., ABE Building
W. Lafayette, IN 47907-2093
Voice: 765-494-5088 (Voice/TTY) or 1-800-825-4264
Fax: 765-496-1356
TDD: 765-494-5088
Website: http://www.barnbuilders.info
E-mail: bng@ecn.purdue.edu
Verified: 01/28/2011

Sibling Support Project

National. 200 affiliated groups. Founded 1990. Organization dedicated to the life-long concerns of brothers and sisters of children with special health, developmental and mental health concerns. Provides training and technical assistance regarding Sibshops and workshops for school-age siblings.
Write:
Sibling Support Project
6512 23rd Ave. NW
Seattle, WA 98117
Voice: 206-297-6368
Website: http://www.siblingsupport.org
E-mail: donmeyer@siblingsupport.org
Verified: 03/23/2011

Project DOCC (Delivery Of Chronic Care)

International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group.
Write:
Project DOCC
18 Dunster Rd.
Great Neck, NY 11021
Voice: 516-829-0786
Fax: 516-498-1899
Website: http://projectdocc.org
E-mail: projdocc@aol.com
Verified: 01/19/2011

United Spinal Association

National. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders.
Write:
United Spinal Association
75-20 Astoria Blvd.
Jackson Heights, NY 11370-1177
Voice: 718-803-3782 ext. 7203
Verified: 01/13/2011

Paralyzed Veterans of America

National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Support groups, publications, VA benefits counseling, magazine, information and referrals.
Write:
Paralyzed Veterans of America
801 18th St. NW
Voice: 1-800-424-8200 or 202-872-1300 (Mon.-Fri., 9am-5pm EST)
Website: http://www.pva.org
E-mail: info@pva.org
Verified: 01/26/2011

Quad-List

Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a spinal cord injury forum. Open to anyone who suffers a partial or full loss of function of all four extremities of the body.
Website: http://www.makoa.org/quadlist.htm
Verified: 03/29/2011

SibNet

Online. 1500+ members. Founded 1998. Listserv for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters.
Website: http://groups.yahoo.com/group/sibnet
Verified: 03/29/2011

This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.