Ehlers Danlos Syndrome

Self Help Clearinghouse

Ehlers-Danlos National Foundation

National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster research. Online message boards for EDNF members.
Write:
EDNF
1760 Old Meadow Rd., Ste 500
McLean, VA 22102
Voice: 703-506-2892
Fax: 703-506-3266
Website: http://www.ednf.org
E-mail: ednfstaff@ednf.org
Verified: 8/7/2012


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