Ellis Van Creveld Syndrome / Chondroectodermal Dysplasia

Self Help Clearinghouse

Ellis Van Creveld Support Group

International network. Founded 1997. Provides support and information for families affected by Ellis Van Creveld syndrome (aka chondroectodermal dysplasia), an extremely rare form of dwarfism. Networks families together for support. Literature, advocacy, phone support, information and referrals. Connects with medical community to find ways to save the lives of infants born with this genetic disorder.
Write:
Ellis Van Creveld Support Group
17 Bridlewood Trail
Honeoye Falls, NY 14472
Voice: 585-737-1500
E-mail: pattimo44@aol.com
Verified: 12/2/2009


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