Epilepsy / Convulsive Disorders

Self Help Clearinghouse

Epilepsy Foundation

(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs).
Write:
Epilepsy Foundation
8301 Professional Place East
Landover, MD 20785
Voice: 301-459-3700; Professional Library: 1-800-332-1000; Spanish Speakers Only: 1-866-748-8008
Fax: 301-577-2684
Website: http://www.epilepsyfoundation.org
E-mail: info@efa.org
Verified: 7/11/2012

Pyridoxine Dependent Kids

Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards.
Website: http://groups.yahoo.com/group/b6children
E-mail: b6children-owner@yahoogroups.com
Verified: 8/2/2012

Charlie Foundation To Help Cure Pediatric Epilepsy

Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy.
Website: http://groups.yahoo.com/group/b6children
Verified: 6/29/2012

Ketogenic Diet Support Group

Online. Founded 2000. 34 members. Provides support for parents, family members, and caregivers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.
Website: http://health.groups.yahoo.com/group/ketogenic
E-mail: ketogenic-owner@yahoogroups.com
Verified: 8/16/2012