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Epilepsy / Convulsive Disorders
Self Help Clearinghouse
(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs).
8301 Professional Place East
Landover, MD 20785
Voice: 301-459-3700; Professional Library: 1-800-332-1000; Spanish Speakers Only: 1-866-748-8008
Pyridoxine Dependent Kids
Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards.
Charlie Foundation To Help Cure Pediatric Epilepsy
Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy.
Ketogenic Diet Support Group
Online. Founded 2000. 34 members. Provides support for parents, family members, and caregivers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.