Fragile X Syndrome

Self Help Clearinghouse

FRAXA Research Foundation

International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.
Write:
FRAXA Research Foundation
10 Prince Place, Ste. 203
Newburyport, MA 01950
Voice: 978-462-1866
Website: http://www.fraxa.org
E-mail: info@fraxa.org
Verified: 7/25/2012

The National Fragile X Foundation

International. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X associated disorders (fragile x sundrome, fragile X-associated tremor/ataxia syndrome and fragile X-associated primary ovarian insufficiency). Services include a quarterly journal, regional and international conferences and educational materials (free and fee-based).
Write:
National Fragile X Foundation
P.O. Box 37
Walnut Creek, CA 94597
Voice: 1-800-688-8765 (Mon.-Fri., 8:30am-5pm PST)
Fax: 925-938-9315
Website: http://www.fragilex.org and http://www.fxtas.org
E-mail: natlfx@fragilex.org
Verified: 7/2/2012