Glycoprotein Storage Disease

Self Help Clearinghouse

International Advocate for Glycoprotein Storage Disease (ISMRD)

International network. Founded 1999. Provides emotional support for families affected by any glycoprotein storage disease. Offers educational resources for medical community. Promotes research to develop treatments. Phone support, literature, pen pals, newsletter, advocacy, online message boards, chatrooms, e-mail discussions, information and referrals.
Write:
ISMRD
2922 Deerford St.
Lakewood, CA 90712
Website: http://www.ismrd.org
E-mail: info@ismrd.org
Verified: 12/11/2009


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