Hallerevorden-Spatz / Neurodegeneration with Brain Iron Accumulation

Self Help Clearinghouse

NBIA Disorders Association

International network. Founded 1996. Provides emotional support to families affected by neurodegeneration with brain iron accumulation, a rare progressive neurological disorder resulting in iron deposits in the brain that causes loss of muscle control. Formerly Hallervorden-Spatz syndrome. Educates public on NBIA, supports and monitors research through grants and BioBank. Newsletter, literature, bi-annual conferences, on-line listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.nbiadisorders.org
E-mail: info@nbiadisorders.org
Verified: 12/2/2009


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