Hemangioma / Vascular Malformations

Self Help Clearinghouse

Hemangioma Support System

National network. Founded 1990. Provides parent-to-parent support for families affected by hemangiomas.
Write:
Hemangioma Support System
c/o Cynthia Schumerth
1484 Sand Acres Dr.
DePere, WI 54115
Voice: 920-336-9399 (after 8pm CST)
Verified: 2/3/2010

NOVA (National Organization of Vascular Anomalies)

National. Provides support for patients and their families in the diagnosis of hemangioma and vascular malformations. Networks families together for support. Offers videos, doctor referrals, free medical conferences, educational and support materials. Online newsletter. Holds international conferences (contact K. Hall at khall@mail.novanews.org for conference information).
Write:
NOVA
P.O. Box 0358
Findlay, OH 45840
Voice: 419-425-1589
Verified: 12/2/2009


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