Holoprosencephaly

Self Help Clearinghouse

Families for HoPE, Inc.

National. Offers support and education to families of infants and children diagnosed with holoprosencephaly (HPE), a congenital brain malformation. Offers support for all stages of the HPE journey.
Write:
Families for HoPE, Inc.
1219 N. Wittfield St.
Indianapolis, IN 46229
Voice: 317-898-5556
Website: http://www.familiesforhope.org
E-mail: info@familiesforhope.org
Verified: 12/2/2009

Holoprosencephaly Support Group

Online. 554 members. Founded 1999. Mutual support for parents and families of children with holoprosencephaly (HPE). HPE is a rare birth disorder caused by the failure of the forebrain of the embryo to properly divide, causing defects in the development of the face, along with brain structure and function.
Website: http://health.groups.yahoo.com/group/holoprosencephaly
Verified: 9/27/2010


This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.



Topic Contents

    Healthwise. For every health decision