Kabuki Syndrome

Self Help Clearinghouse

Kabuki Syndrome Network

(BILINGUAL) International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.
Write:
Kabuki Syndrome Network, c/o Dean and Margot Schmiedge
8060 Struthers Cr.
S4Y 1J3, Saskatchewan, CANADA S4Y 1J3
Website: http://www.kabukisyndrome.com
E-mail: margot@kabukisyndrome.com
Verified: 7/24/2012


This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.



Topic Contents

    Healthwise. For every health decision