Kidney Disease

Self Help Clearinghouse

American Association of Kidney Patients

National. 14 chapters. Founded 1969. Patient organization dedicated to helping renal patients and their families deal with the physical, emotional and social impact of kidney disease. Aim is to inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. Provides education and support for kidney patients, including those with reduced kidney function, on dialysis and transplant patients. Offers various educational materials, a bimonthly and quarterly magazine, two electronic newsletters and an annual convention.
Write:
American Association of Kidney Patients
3505 E. Frontage Rd., Suite 315
Tampa, FL 33607
Voice: 1-800-749-2257 or 813-636-8100 (Mon.-Fri., 8:30am-4:30pm EST)
Fax: 813-636-8122
Website: http://www.aakp.org
E-mail: info@aakp.org
Verified: 10/13/2010

PKD Foundation for Research in Polycystic Kidney Disease

International. 65 volunteer Friends chapters. Founded 1982. Funds research and provides emotional support and education for persons with polycystic kidney disease and their families. Promotes public awareness. Holds medical seminars and fund-raisers. Conferences, phone support, newsletter and assistance in starting new groups.
Write:
PKR Foundation
8330 Ward Parkway, Ste. 400
Kansas City, MO 64114
Voice: 1-800-753-2873 or 816-931-2600
Fax: 816-931-8655
Website: http://www.pkdcure.org
E-mail: daves@pkdcure.org
Verified: 10/14/2010

Bartter Syndrome

Online. 745 members. Founded 2003. Support for patients, family members and friends affected by Bartter and/or Gitelman's syndrome - kidney disorders that cause patients to suffer a variety of symptoms, many of which are caused by metabolic alkalosis and chronically low potassium and magnesium levels.
Website: http://health.groups.yahoo.com/group/barttersyndrome
Verified: 1/20/2010