Leukodystrophy
Self Help Clearinghouse
United Leukodystrophy Foundation, Inc.
National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.
Write:
United Leukodystrophy Foundation, Inc.
2304 Highland Dr.
Sycamore, IL 60178
Voice: 1-800-728-5483 or 815-895-3211
Fax: 815-895-2432
Website: http://www.ulf.org
E-mail: office@ulf.org
Verified: 12/15/2009
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