Marfan Syndrome

Self Help Clearinghouse

National Marfan Foundation

National network. Founded 1981. Network includes chapters, support groups and volunteer telephone support contacts. Provides information on Marfan syndrome and related connective tissue disorders to patients, families, medical professionals and the public. Provides a means for patients and relatives to share experiences and support one another. Supports and fosters research. Conference, newsletter and publications.
Write:
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Voice: 1-800-862-7326 or 516-883-8712
Fax: 516-883-8040
Website: http://www.marfan.org
E-mail: staff@marfan.org
Verified: 8/14/2012


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