Mitochondrial Disorders
Self Help Clearinghouse
United Mitochondrial Disease Foundation (UMDF)
National network. 13 chapters. 17 affiliated groups. Founded 1995. Provides support to affected individuals and families, promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders. Chapter support groups. Networking for families affected by mitochondrial disease, a genetic degenerative disease. Quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants.
Write:
UMDF
8085 Saltsburg Rd., Suite 201
Pittsburgh, PA 15239
Voice: 412-793-8077
Fax: 412-793-6477
Website: http://www.umdf.org
E-mail: info@umdf.org
Verified: 12/8/2009
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