Porphyria

Self Help Clearinghouse

American Porphyria Foundation

National network. Founded 1981. Supports research, provides education and information to the public, patients and physicians. Networks porphyria patients and support groups. Quarterly newsletter, pen pal program, phone network and group development guidelines available. Donation $35/yr.
Write:
American Porphyria Foundation
4900 Woodway Drive, Ste 780
Houston, TX 77056-1837
Voice: 713-266-9617 (Mon.-Fri., 9am-4pm CST)
Fax: 713-840-9552
Website: http://www.porphyriafoundation.com
E-mail: porphyrus@aol.com
Verified: 9/2/2011


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