Primary Lateral Sclerosis

Self Help Clearinghouse

Spastic Paraplegia Foundation, Inc.

National. Founded 2002. Offers support and information to those affected by primary lateral sclerosis and hereditary spastic paraplegia. Supports research. Offers regional and e-mail support groups, online chat group, newsletter and information.
Write:
Spastic Paraplegia Foundation, Inc.
PO Box 1208
Fortson, GA 31808
Voice: 1-877-773-4483
Website: http://www.sp-foundation.org
E-mail: information@sp-foundation.org
Verified: 7/24/2012

ALS Forums

Online. 550+ members. Support, information and sharing of experiences for persons with amyotrophic lateral sclerosis (Lou Gehrig's disease) and motor neuron diseases, their families and friends. Also includes primary lateral sclerosis, progressive muscular atrophy and multifocal motor neuropathy.
Website: http://www.alsforums.com
Verified: 6/29/2012

PLS Friends

Online. Opportunity for persons with primary lateral sclerosis or hereditary spastic paraplegia, progressive neuromuscular disorders, to share information and support via an online discussion group. Fosters support and an exchange of ideas among PLSand HSP patients, their relatives, caregivers and health care professionals.
PO Box 117
Sherman, CT 06784
Website: http://health.groups.yahoo.com/group/pls-friends
E-mail: PLS-FRIENDS-owner@yahoogroups.com
Verified: 7/2/2012