Sarcoidosis

Self Help Clearinghouse

Sarcoid Networking Association

National network. Founded 1992. Provides support and education for sarcoidosis patients, their families and friends via newsletter, correspondence, phone and e-mail. Publication 'Sarcoidosis Networking' published 4 times/yr. Provides information on local groups. Offers seminars, conferences, research, advocacy and meetings. Assistance in starting new groups.
Write:
Sarcoid Networking Association
5302 Sheridan Ave.
Tacoma, WA 98408-3535
Voice: 253-826-7737 (Tues., Wed., Thurs. 10am-4pm PST)
Website: http://www.sarcoidosisnetwork.org
Verified: 8/3/2012

Foundation for Sarcoidosis Research, The

National network. Founded 2000. Provides information, resources and research news on sarcoidosis (a multi-system disease that causes inflammation of the body's tissues) to patients, their families and physicians. Online support offers patients a safe environment to share their stories and participate in discussion groups. Provides literature on how to start a support group.
Write:
Foundation Sarcoidosis Research
1820 West Webster Ave., Ste 304
Chicago, IL 60614
Voice: 312-341-0500
Website: http://www.stopsarcoidosis.org
E-mail: info@stopsarcoidosis.org
Verified: 7/31/2012