Sarcoidosis

Self Help Clearinghouse

Sarcoid Networking Association

National network. Founded 1992. Provides support and education for sarcoidosis patients, their families and friends via newsletter, correspondence, phone and e-mail. Publication 'Sarcoidosis Networking' published 4 times a year. Provides information on local groups. Offers seminars, conferences, research, advocacy and meetings. Assistance in starting new groups.
Write:
Sarcoid Networking Association
5302 Sheridan Ave.
Tacoma, WA 98408-3535
Voice: 253-826-7737 (Tues., Wed., Thurs., 10am-4pm PST)
Website: http://www.sarcoidosisnetwork.org
E-mail: sarcoidosisinformation@sarcoidosisnetwork.org
Verified: 9/23/2010

Foundation for Sarcoidosis Research

National network. Founded 2000. Provides information, resources and research news on sarcoidosis (a multi-system disease that causes inflammation of the body's tissues) to patients, their families and physicians. Online support offers patients a safe environment to share their stories and participate in discussion groups. Provides literature on how to start a support group.
Write:
Foundation for Sarcoidosis Research
122 S. Michigan Ave., Suite 1700
Chicago, IL 60603
Voice: Jan 312-341-0500
Fax: 312-322-9808
Website: http://www.stopsarcoidosis.org
E-mail: info@stopsarcoidosis.org
Verified: 9/17/2010