Shwachman-Diamond Syndrome

Self Help Clearinghouse

Shwachman-Diamond Syndrome Foundation

National network. Founded 1994. Patient advocacy organization whose goals are to support research towards a cure and improve medical management of symptoms. Links families for emotional support and provides them with the most current medical information available which is provided through the knowledge and cooperation of a professional medical advisory board.
Write:
Shwachman-Diamond Syndrome Foundation
127 Western Ave.
Sherborn, MA 01770
Voice: 1-888-825-7373
Website: http://www.shwachman-diamond.org
Verified: 4/3/2012


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