Stevens Johnson Syndrome

Self Help Clearinghouse

Aniridia Foundation International

International. Founded 2002. Offers support, data studies, research and education to the public, medical community and families with aniridia syndrome (Children born with multiple blinding eye and medical conditions). Provides medical and social conferences, newsletters, medical research for conditions wich makde up the condaition.
Write:
Aniridia Foundation International, c/o Univ. of VA School of Med.
P.O. Box 800715
Charlottesville, VA 22908-0715
Voice: 901-409-1600
Website: http://www.aniridia.net
E-mail: info@aniridia.net
Verified: 7/26/2012

Stevens-Johnson Syndrome Foundation

International network. Founded 1995. Provides to the public and medical communities information on adverse allergic drug reactions. Aim is to quicken diagnoses to avoid permanent damage. Literature, phone support, chatroom, online group, moderated discussion group, information and referrals.
Write:
Stevens-Johnson Syndrome
P.O. Box 350333
Westminster, CO 80035
Voice: 303-635-1241
Fax: 303-648-6686
Website: http://www.sjsupport.org and http://www.sjskidssupport.org
E-mail: sjsupport@aol.com
Verified: 8/2/2012