Sturge-Weber

Self Help Clearinghouse

The Sturge-Weber Foundation

International network. Members in 50 states and internationally. Founded 1987. Mutual support network for families and professionals involved with Sturge-Weber syndrome, Port Wine birthmarks or Klippel Trenaunay syndrome. Disseminates information, funds and facilitates research. Newsletter, e-news monthly, phone support, bi-annual conference, pen pals and active e-mail support group. Educational materials for schools, parents and clinicians.
Write:
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Voice: 1-800-627-5482 or 973-895-4445
Fax: 973-895-4846
Website: http://www.sturge-weber.org
E-mail: swf@sturge-weber.org
Verified: 7/17/2012


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