Undiagnosed Illness

Self Help Clearinghouse

Syndromes Without A Name (SWAN) USA

National. Founded 2004. Mutual support network and information for parents of children with an undiagnosed or unnamed condition. Newsletter and E-list discussion group for parents to share information and provide each other with support.
Write:
Syndromes Without A Name
1745 Lorna Lane
Otsego, MI 49078
Voice: 1-888-880-7926 or 269-694-6061
Website: http://www.undiagnosed-usa.org
E-mail: amyclugston@undiagnosed-usa.org
Verified: 7/17/2012

Hearts and Hands

Model. 1 group in NC. Founded 1993. Emotional, spiritual and educational support for persons with either rare or undiagnosed illnesses and their families. Special interest in loin pain hematuria syndrome.
Write:
Hearts and Hands, c/o Winoka Plummer
1648 Oliver's Crossing Circle
Winston-Salem, NC 27127
Voice: 336-785-7612
Verified: 8/9/2012


This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.



Topic Contents

    Healthwise. For every health decision